Patient and Public Involvement

Patient and Public Involvement (PPI) is about carrying out research with’ or ‘by’ members of the public (e.g. people living with the condition, their carers/supporters and the general public), rather than ‘to’, ‘about’ or ‘for’ them” and should be conducted in such a way that it promotes their meaningful and active involvement.

Patient and Public Involvement (PPI) in RADAR-AD

Patient and Public Involvement (PPI) is about carrying out research with’ or ‘by’ members of the public (e.g. people living with the condition, their carers/supporters and the general public), rather than ‘to’, ‘about’ or ‘for’ them” and should be conducted in such a way that it promotes their meaningful and active involvement.

People affected by Alzheimer’s disease (AD) can bring a unique perspective to research. They can actively and meaningfully contribute towards several aspects of the project. To involve people affected by AD in an appropriate and significant manner, RADAR-AD has set up an international Patient Advisory Board (PAB) and has conducted some local focus groups in the Netherlands, Greece and the UK.

  • To learn more about the PAB and the work it has carried out click here ADD INTERNAL LINK.
  • To learn more about the focus groups click here. ADD INTERNAL LINK

PPI activities are coordinated by Lygature, Alzheimer Europe and KCL, in partnership with researchers leading the different areas of work in the project.

If you want to learn more about PPI in dementia research, please see Alzheimer Europe’s position paper on this topic.